8/17/09 Upcoming procedure & test's

Well this last few days have been hard ones, my breathing, chest pains and weakness have been severe. As long as I stay still it calms down, I'm hoping in a few days it will pass. I went to UCSF on Thursday and they took 9 vials of blood, lol, they don't mess around. I now have 3 more appointments scheduled and waiting to hear back regarding the other specialist I've been sent to. This week I go in for a Esophageal Manometry/Impendence which is a camera is put through my nose to/around my upper GI to see how my muscles are working. It's stays in for 24 hours so the next day another trip to the city to have it removed. It takes 1-2 hours for it to be put in, which I am awake for. They already ruled out any kind of acid or any problems in that nature being the cause of these chest pains. This will tell us how my muscles in that whole area are working. Then the following Monday is my brain MRI (was requested from a doctor outside of UCSF ) so this next week will be another busy one. I'm very happy with all of the UCSF doctors & teams I've met and know in my gut they will find the answers, that's the first time in 20 plus years I've felt that. Even though my body is totally exhausted and my brain in a fog my spirit is happy & relieved. Yes, I'm scared with these new chest pains, dizziness, breathing, ect...but know if I just hold on they will find the cause. The bad news is the Cardio dept is busy till Oct and they cant see me till then. If anyone is reading this at first I write as if it's a journal and then come back and clean it up. My goal is still to go back to the beginning to whats going on today. Until then, I've basically been getting slowly sick since I was around 20-25 years. I was born with bad knee caps and lived with pain with that from the 5th grade and on, so I've been in 24/7 pain my whole life with some part of my body. In my 20's it was small signs but I didn't let it get in the way.